Wednesday, November 16, 2016
Isn’t it funny how there are certain aspects of our appearance that we feel define us in some way? Mine has surely been my hair - very thick, brown, straight and quick to grow. I miss the weight of my heavy braid down my back between my shoulders. I have a feeling that when this hair loss grows back in (hopefully) it is not going to be brown anymore. The new little strands are all silvery grey. Am I having one of those dramatic hair color change episodes in my life after a seriously ill summer and some new chemo meds for the RA? Too funny.
The good news is how well the Rituxan is working for me. I am in month 4 after my first set of infusions and the RA symptoms are very much gone. I still get tired and my muscles get sore from being active again, but that is pretty normal stuff. Hopefully I can make it through the six month cycle with no flares, which puts me into early February for the next round of medication. No need for prednisone, pain meds or a cane, how good can things get?
I am also able to hand stitch again so my photo in this post is a close-up of my almost completed La Passacaglia quilt top that has been hand basted and stitched, made entirely of Liberty Tana Lawn fabrics. I was so crippled this summer that I did not sew much, but I have been playing catch up since the Rituxan has made me feel so very much better.
Here’s hoping tomorrow is another good day!
Monday, November 7, 2016
I have to smile. All summer when I was so very ill my hair looked wonderful. This fall, now that I am feeling so much better my hair is falling out. There’s justice for you! The doctors are unsure about the reasons for this hair loss. They seem to think it is not the Rituxan and Methotrexate combination, although they have prescribed a slow-release folic acid tablet for once a week in addition to the daily dose I have been taking for years.
Pretty much any actions are too little and too late for my hair. I have lost so much that even if it does come back I will be an oddity with short on top and long hair down my back. Thus, the trip to the stylist. If my hair can’t be its beautiful self, it has to be changed. Who knows, it may all fall out before this journey comes to an end! Ugh! I posted a “long ago” picture from 40 years ago just for cheering up purposes. FYI, the “old hair” still looks (looked) pretty much the same.